The Langer-Giedion Syndrome Association is an international network of families and professionals dedicated to providing information and support to people affected by LGS/TRPSII. Their mission is to further the understanding of LGS?TRPSII; to provide support through information on diagnosis, treatments and life issues; to connect families; and to advocate for continued research.
Activities include a tri-annual newsletter, LGS/TRPSII Links; family matching; outreach to increase our database of affected individuals; a web page; and networking with specialists to promote research.
Annual membership is $20US.
For more information, see the LGSA Home Page. or contact:
Raquel Rozenberg
11695 Boulton Ave.
San Diego, CA
92128, USA
lgsa@geocities.com
Louise Kinross
89 Ingham Ave.
Toronto, Ont.
M4K 2W8, Canada
kinross@istar.ca
Also see the TRPS support group web page serving TRPSI, II, and III families
Back to:
TRPS/LGS Home Page